Help for Healing

Bitter & Sweet, living daily with grief

Why Do I Bother?

2 Comments

I received a letter that was most disturbing. It literally took the wind out of my sails. I felt my energy drain out of me and within 15 minutes I found myself in bed at 730 pm, checked out for the night.

It was from the Department of Health. It read like this: “Upon completion of the investigation, based on all the information available to OPMC (Office of Professions, my parenthesis), there is insufficient evidence to bring a charge of professional misconduct…”

I couldn’t believe it. And it has thrown me into another existential career crisis. This was so obvious and blatant to me, my jaw (and heart) dropped.

Ignored my dad’s request for help with his pain for four business days.

Refused to order a catheter at dad’s request, in spite of Dad being a serious fall risk due to the Parkinson’s and the nature of his infection. He even went so far as to say, “If you aren’t willing to take an antibiotic, I’m not letting you have a catheter.”

Blatant bullying behavior toward my father with statements like, “You understand this infection could kill you and you still won’t take the antibiotic?” And the most unprofessional of all, “Well, if this is what you want for your life, peeing your bed, going to the bathroom every 30 minutes, you just keep right on refusing the antibiotic.”

Requiring a conversation with the Hospice CEO before agreeing to a catheter, but refusing to read the texts that came directly from that CEO.

All of that is disgusting, but could be stretched to say it’s a matter of opinion if you really want to go out of your way to defend him. But what is NOT debatable, is the professional, ethical and legal responsibility of a doctor to RESPECT A PATIENT’S WISHES AND RIGHTS. Dad had his ducks in a row. He had a legitimate, accurately completed MOLST form. It is without doubt a clear expectation of every medical professional to respect that. So many more details I won’t take the time to write.

This doesn’t get easier with time. If fact, the more times the ball is dropped and justice is not done, I get more and more angry.

Why do I bother? Yes, because it’s the “right” thing to do. Honestly though, I spent hours and hours documenting what happened, filling out the proper forms, and speaking with investigators at length. I was told that this case would most likely go very high up the chain because the behavior exhibited was of such a serious nature.

And now this.

Nothing. How do I not throw in the towel like most people do? Why should I be the exception and continue to fight and never give up? I am seriously questioning if the things I pursue are a good use of my time and energy. I would not apologize for being emotional about my loved one, but this was not about that. There were repeated unethical acts against Dad and something drastic needs to be changed.

But it’s obviously not going to happen. Not on a professional level, not on a state level. And even the facility has chosen to keep him employed in spite of the havoc that was caused by his behavior. And oh yeah, a man more than worthy of an honorable and peaceful death got nothing of the kind.

I’m pissed. I’m disgusted. I’m crying. I’m angry. Disheartened. Wondering if I should even bother anymore. I’m bitter – that grieving my father has been more painful than I could have imagined and now AGAIN, it’s clouded with this utter nonsense.

Author: helpforhealing

My name is Darcy Thiel. What people say they appreciate most about me is my genuine nature. I utilize my professional and personal experiences to increase my understanding and compassion to help others. My career has many faces, so let me tell you about a few. I am a Licensed Mental Health Counselor in NY State and am a couple and family therapist in West Seneca, New York. Also, as an Aging Life Care Manager, I take my life experiences with my mother and husband's illnesses and passing combined with over a decade of assisting a dad with Parkinson’s, to help others navigate the crazy, complicated medical world we live in. This dovetails with the books I have written. Bitter and Sweet: A Family’s Journey with Cancer, the prequel to Life After Death, on This Side of Heaven are an honest and raw perspective on coping with the diagnosis and subsequent loss of Tim, my spouse. I have also done extensive speaking on the above topics through live audiences, radio shows, and even an occasional TV spot. For more information, see my websites at www.marriageandfamilycounseling.net, www.babycooppublishing.com, or www.darcythiel.com. Copyright Help for Healing by Darcy Thiel © 2012-2018. All rights reserved.

2 thoughts on “Why Do I Bother?

  1. Big fat boooo on them. But not surprised. So sorry.

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