Help for Healing

Bitter & Sweet, living daily with grief


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Legal Lying

When I am with clients, I am very careful to articulate that while I may have some experience, I am NOT a doctor, and I am NOT a lawyer. I don’t want to misrepresent myself and give advice out of my scope of competence.

But holy crap, do I ever wish other professionals would do the same. Last week we were exposed to a lawyer that is everything that gives them a bad name. Why can someone who DOES have the official training and degree get to go out and blatantly lie about what is legal and what is not?

Poor Tim has been trying to sell his trailer since February. We thought we had a buyer a couple of weeks ago. Correction. We DID have a buyer. He signed a binding contract with an agreed-upon amount. It clearly stated the trailer was “as-is” and even a non-lawyer could understand it. Tim knew the guy and he is a close friend of two of our relatives. He was actually excited about buying it.

Then his “cousin” who is a lawyer got involved. It started weeks of nonsense. I mean utter nonsense. He was saying and doing things that are absolutely not the way a trailer is sold. A trailer is like buying a vehicle. Most people don’t even have a lawyer for the transaction. Couldn’t be more simple.

One of his brilliant suggestions was giving us a check for half the amount, allowing his cousin to live there for a while. If he decided he liked it, he would pay the other half. Who in their right mind would agree to that? Wish I could get a car dealership to agree to something like that.

I won’t bore you with the dozens of untrue things he said. I will tell you the day he was supposed to pay, they brought four people to the trailer. One was a home inspector. Oh yea, they lied about that too. He was a contractor, not a licensed inspector. They decided the trailer was “unsafe” and breached the contract. After they provoked Tim until he loudly told them to get off his property (with an expletive or two) he got applause from the ridiculously dressed lawyer. (He had on a suit and bow-tie.)

The kicker was discovering the contractor was trying to record it all. It honestly felt like the whole thing was a set-up. Perhaps they thought they could provoke Tim enough to hit someone so they could record it. They severely underestimated my guy.

What is beyond comprehension is that this lawyer works for the city of Buffalo. He’s high up and all over the Internet. Another lawyer explained to us that these city slickers are used to doing whatever they want. The follow-up communication was more nonsense with absolute untruths regarding the law.

It infuriates me. I already hate politics. Kills me that this guy can go around doing what he is doing because he knows he’s untouchable. The law doesn’t touch him. He calls himself a lawyer but advises people erroneously and without shame.

Anyone out there who is honest that wants to buy a trailer?


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Dying in America

I have been reading this mammoth 506 page document referenced at the end of the blog. I admit some of it I read and get the general gist but I couldn’t parrot back the details.

Other times, I feel like I am reading the biography of my father. All of the death experiences I have had with loved ones as well as my own dealings with the medical system certainly resonate too.

It’s strange because I’ve built my business, lectures, etc. around my hard-learned life experiences. I’ve probably said a thousand times that our medical system is broken and I would have no idea how to fix it. Now, reading this work that was published in 2015, it is all there in black and white. I understand slightly better WHY it is broken. I understand a teensy bit HOW it might be fixed.

But mostly, even though it is incredibly validating to read that I actually do know what I am talking about, it is beyond maddening that this stuff is real. It is so lacking in common sense, it is incomprehensible things are allowed to exist the way they are.

Reading on the Kindle platform, I am able to highlight things as I go. I am also able to add “notes” that store in the relevant sections of information. I am like a broken record in my notes when I start with, “This is the like the time with Dad when…”.

There is a plethora of research to back up the usefulness and credibility of end-of-life care. Yet the statistics keep bearing out that most folks don’t die the way they wished. And those that get palliative care only get it briefly at the very end of their lives. Getting it months sooner would be ridiculously more beneficial to the patient and their families. And the big whammy? That actually costs much LESS money.

I have had so many clients and close friends lose people dear to them. Even though they know what I do, most people think they understand what is happening and what their rights are. I hear the horror stories afterward and I want to scream out loud. It didn’t have to be that way!

Yet this will continue, probably throughout the rest of my life on earth. My business won’t make it and my heart will keep breaking because folks (medical and lay) don’t understand death, and don’t understand there are other ways to let things happen than the way they normally fall out. In part, because we still just don’t want to talk about it or deal with it. And we definitely don’t want to feel like we have failed our loved ones in any way.

Even recently when I was at the statewide palliative conference, as I told my story those folks were saying things like, “How did you even know to call the Department of Health?” It makes me sick to think of how many people, every single day, are bullied into choices not in their best interest. And worse yet, they don’t even know they were bullied.

I just took a deep, deep breath as I was writing this. I guess I am equally as crazy, because even though I know all of this, I am going to keep going. I will keep trying and fighting and learning and reading. I’m not even sure why, I just know my passion for this doesn’t seem to be dying.

Pun intended.

Institute of Medicine. 2015. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington, DC: The National Academies Press. https://doi.org/10.17226/18748.


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The Mighty Dollar

I hate to be cynical but…

We have laws/legislature that supposedly protects people. While that might be true, there is no doubt in my mind that a big factor (perhaps the biggest factor?) comes down to money. Almost always does.

I was at a big conference in Albany this week where we were talking about some of these issues. The example I used was my dad. I know there are assisted living facilities that don’t have nurses on staff. However, his did. Not allowing his family to provide medication was undoubtedly for money, not for his protection. How do I know? The literal first words out of their mouths at our meeting were: Now that your dad can no longer take his own medication, you need to pay our medical staff to do so. Let’s see, that is $750 more a month.

Bite me.

Yesterday, I finally got a second opinion on my foot. After 5 1/2 months of post-surgery pain, I am now told I need a nerve shot. (Ouch!) Why can’t I get it while I am already here? You guessed it, money.

DAMN THEM. Insurance won’t pay for two appointments on the same day at the same facility. I have to live in pain for another 24 hours then return to the exact same place to get the treatment I need. How is that is any way, shape or form for the benefit of the patient? If they aren’t going to get paid, they aren’t going to do it. Why shouldn’t they get paid? And why should I be in pain for a longer period of time for no good reason? No common sense. I’m right in the office but get sent home untreated.

Ticks me off. Broken systems again. Makes me sound like a broken record.

Anyway, got the shot today. We will see what happens. The opinion is though, that most likely problems will come back and I will need a second surgery. Guess what? That’s what dumb ‘ol me said four months ago. Five months of PT twice a week, all kinds of contraptions and creams that cost money, and consistent pain with no relief. For what? To end up in the same place. At least I could have had the second surgery back in December and already been recovered by now.

Sigh.

Imperfect world. Thanks for listening to the rant.